A voice

What is a voice? It’s what we use to speak; to convey so much – thoughts, feelings, emotions, wants, needs, fears, joys, sorrows. All given life by our voice.

Sometimes our voice is so quiet that we can’t even hear it ourselves, never mind have it audible to others, especially those that we want to hear it. Sometimes it’s so loud that it’s all we can hear and we crave the silence that comes when it is squashed down and muffled by the distractions that we all become so adept at using.

Voices rise and fall and change. They shift and they are fluid like the waves in the air that carry them. Voices can be silent too though. So much spoken without a single sound. Still a voice, still carrying a message.

As I read little pieces of my sons journals I hear his voice. Not his spoken voice anymore but his message carried in his writings. I hear his confusion and his frustration, his yearning for it to all not be how it was for him – for us. I hear the glimmers of hope that he still had, and I hear how that hope faded as the weeks slipped into months and he saw no change for the better in his mind. I hear the sadness that he felt as he heard his own voice, with awareness of his mental illness that grew inside of him, that he felt WAS him. I hear his pleas for help, and I hear when he decided that he knew the answer to his plea. I hear, in his words, the pain that he felt when he surrendered to that decision.

I have kept his voice from his journals so private and in doing so, his voice is silent in a way. I wonder sometimes if that’s the right decision. The first time I heard what he had to say I was shocked and, honestly, I recoiled from it. The raw, violence of his voice, the pain that seared on the pages in his voice scared me – and still does. The desperation and fear that he gave voice to on those pages tore at me and ripped me apart inside. I sit back now, 5 years later, and wonder if maybe that voice, and what it evokes, should be louder. Not so private and not silenced. He died but his voice didn’t.

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Yes you can, and you will

For those who lose someone and think they can’t go on.

 

A comment that I read on social media today made me actually speak out loud to my computer. It was a comment that someone made on a thread that was discussing the latest celebrity passing. Debbie Reynolds, having just lost her daughter Carrie Fisher the day before, had passed away and this person expressed her belief this way: “I would die after burying my child too.”. The words “No you wouldn’t” flew out of my mouth. There may have even been a hand gesture at the screen. Ok, more than maybe. There was, and it was dismissive.

I can absolutely understand this sentiment that this person stated. Losing a child is regarded as the worst thing that can happen to a parent – and it does indeed suck in a huge way like nothing else – and that is an understatement of epic proportions! However, like all things in life that we don’t think we can live through, we do. Trust me on this one, sometimes you wish you wouldn’t make it, but you do.

Having been there myself, there were many time that I wished that I would just not wake up the next morning. Actually, more than wishing, I  wanted that. The option of waking up every day and feeling as horrendously as I did that first little while was not an option that I wanted. Nope, not even one little bit. Being healthy and generally ok physically though, I did keep waking up everyday. Waking up and still hurting so badly that I felt like I would die. Waking up and hurting so badly that I wished I would die so it would end. Not because I didn’t want to live, but because I didn’t want to live like I was – having lost my son.

Those wishes didn’t come true though. Not in the way that I wanted then, but they have come true in some manner.

I don’t wake up every day hurting as much as I did in that first while. Some days I do, and I would be lying if I said that it never hurts like that anymore. It does – and it always will, I think. It didn’t kill me though and it won’t.

I remember a conversation that I had with my sons father about a couple of months after our son died. At the time we were getting together to talk and share our grief (we had been divorced for many years). He asked “What if it never gets better? What if it never gets easier to live with? What if all those parents who have lost children who say it gets easier are lying? What if how it feels right now is how it’s always going to feel?” I assured him that he was wrong; that of course it would get easier, blah blah blah. The truth was that I didn’t know if it would and how I felt then, I sure didn’t believe it myself. I also knew that he needed to hear that his fears were unfounded. So that was what I told him. For the record, I don’t think he believed me.

Almost five years later now and I can say that, for me, grief has become something that is manageable – most days. I can’t speak for him and we haven’t talked in awhile so I’m not sure how he’s doing to be honest. I can say though that, now, I do believe that those parents who say it gets easier to live with, probably aren’t lying. Does it get “Better” with a capital B? Mmmmm, that’s not something I can answer because that concept (to me) infers that the “issue” is resolved, and death is one issue that won’t ever be reversed or resolved. So I’ll leave “Better” up to each person’s interpretation.

I can say though that when you lose someone and you’re thought is “I can’t live, I can’t go on”, I want to remind you that “Yes you can, you will”.

Can a person die of a broken heart? I believe they can in some ways. Debbie Reynolds was 84 and yes, it is very likely that the stress and shock of her daughter’s death tripped the wire that was holding her in this life.

Can a person choose not to live because of a broken heart?  Yes, and that’s worse than them dying because of it, in my opinion.

You can’t choose to not hurt, but you can choose to hurt and live anyways.

Yes, you can, and you will.

An open note

It’s been a rough day today, and a lot of the feelings that are here are angry ones. Some days just are growly, nasty and cranky and today is one of them. I woke up this morning and was just “off” from the moment I got up. A little anxious, a touch of a bad mood and short tempered, just not a great feeling day. Couldn’t quite put my finger on why but that’s not unusual so I didn’t give it much thought. My thoughts as I went to work were along the lines of trying to shake it off rather than give it any weight and to push the nagging “why” away and just be fine. A couple of hours later and it hits me. Another date that hurts. I’m not going to go into what the date is but suffice to say that there are a lot of them in my life and I would be more than happy most days for my memory to not be as good as it is. A curse more than a blessing, trust me on this one.

 

I know what some people are already thinking – “oh great, here she goes again, trudging up anniversary dates that if she would just shut up about and let them go unmentioned, it would all be fine and she would be better. the only reason she’s feeling and hurting and that these days keep being an issue is because she keeps on MAKING them issues”. Those people can, quite simply, fuck off. Thank you very much. To anyone who is fed up with listening to me or dealing with me or with how long my grief is messing with me, do you think I love this? Don’t you think that I would love to just blissfully meander along like nothing has happened? Don’t you think that I would much prefer to just be happy and not be hurting inside?

I can hear the answers… “Well, you can be. Just don’t dwell on it. Just let it go. Accept it and move forward.”

Oh my goodness! I had no idea I could just decide that the death of my son wouldn’t get me down and that would be the end of it all  *this is sarcasm for those of you who may be sarcastically -challenged* – well NOW I can be okay again and all is good. Thank you so much for enlightening me.

Fuck you.

I have spent my life pushing things that hurt me away. Tucking them down deep, so deeply that I actually believed that they didn’t hurt – or have any effect on me. I can assure you that I am genius level expert at that. Seriously. I got that. Guess what? All that stuff eventually rises to the surface and it gets harder and harder to re-bury it. Guess what else? As I’ve discovered, if you let it bubble up and stop pushing it away and start to deal with it, it loses the power it holds on you. It gets worse at first. Oh, so much worse. It can get so bad that you push it all away again – and again – and again. You see, you can pretend it doesn’t hurt when you don’t acknowledge it, and that can go on for a really long time. A lifetime almost, if you start young and get good at it (trust me on this one, I know from experience). But the tricky part is that it does hurt, just not in ways that you can identify so easily. It comes out in different ways for different people, and at different times it looks differently too.

Hurt and pain demands to be acknowledged and it will be, in whatever way it can figure out. It’s taken the death of my son and the proverbial bandage being ripped off to show me that it’s way easier in the long run to dredge the bad stuff up and let it have the light shone on it than it is to keep denying that it even exists. Because it does and it’s not going to just go away on its own.

Sure, it may be much more easy on the people in my life if I kept the lid on it all and was “fine” but that’s not the truth. I’ve done that for most of my life. Not just for other people, but for myself too. It’s easier to not deal with issues is how it seemed. Sorry if it sucks to be in my life right now and the truth is that no one has to be here but me. There’s the door, you’re welcome to walk out of it and don’t let it hit you on the ass on the way out, buh bye. I wish you would stay but understand if it’s too much. Believe me when I say that there have been (and still are ) many days that I wish I could walk away from my life as well. So far, my track record for not checking out is good and I plan on it staying that way.

The truth is that the time is here now to pick it apart and look at it all and feel it – really feel it finally – and not run from it. Because it chases, and it always catches me anyways. I’m tired. It takes too much out of me to pretend and to keep the masks on – even in front of myself – especially in front of myself. I can’t do it any longer. I don’t want to do it anymore.

Not every day, or every moment of every day sucks. The good and the happy times now far outweigh the depression and the grief-filled-crying-mess-feel-like-giving-up days. That wasn’t the case a couple of years ago and I am aware of that, and grateful for that. I can’t promise that I won’t have a meltdown in an otherwise great day though. I can promise you all that it will pass and that sometimes it will pass in moments or seconds. Tears come up quickly at times, but they also pass just as fast sometimes too. I am just as easy to make laugh as I am to cry. I can also promise that sometimes it won’t pass that easily. There will be times when it will suck, for days on end and it will drive you just as crazy (almost) as it does me. But it will pass – and it will pass easier the more it is expressed. I know this because I’m seeing how that is true.

Feeling the things that hurt and cause pain is nasty. It sucks and it’s shitty and that’s the best way that I can put it today so that’s where I’ll leave it. Out in the open and visible.

Ripples and Differences

After Willie died, one of the things that played over and over in my mind was the usual grief fueled mantra of “something good has to come out of this” aka “this has to have some meaning, it can’t just be what it is (which you don’t even know what it is)”. It is the mantra of every grieving survivor of loss – more so of those who have lost someone in a tragic or sudden manner, especially someone young.

I clung to that like a life raft at times. That someday, somehow,in some way, his death would have meaning and it would serve a purpose. A purpose that would bring happiness or solace to a person’s life in the same magnitude that it had brought pain and sorrow to mine and my family’s. That it would be a catalyst for change in policies and systems that needed it the most. A wonderfully rose-coloured view that gave me what I needed at times to get through nights that blazed with lonely hurting. A wish that, I knew, held promise like a sieve holds water.

Aside from this blog, which to be honest, I frequently consider shutting down because it feels like it doesn’t have any reason to be, I haven’t done anything. Aside from this blog.

There are parents, friends and family members who have created fundraisers, walks, awareness building events and the like as their way of making the death of their person “mean something” or “do some good”. They speak or give presentations or write for publications that shine a light on the tragedy or the injustice that caused their loved one’s death. They expose and discuss and petition for change in the gaps in resources, funding, hospital beds, out-patient services, access to care… the list is endless and varied. They open the lines of communications, they give voice to those who can’t speak anymore. They shine a light on the things in the shadows. All great work and yes, sometimes, changes are made and impacts happen.

I’ve seen the almost manic pursuit of trying to realize the dream of making their loss into something that make sense. Of have it not be for nothing… because if it doesn’t have some good come of it, then what? What is it but a senseless and unfair death that shouldn’t have happened? What do you do with that, how do you figure out how to live with that?

You just do, because the truth is that no matter what difference you make, it will never make the one difference that will make it better for you. It won’t bring them back. Reality check – it also may never stop it from happening to someone else. Life isn’t always fair and death is part of it and sometimes, you just can’t do anything about it. I’m not saying we shouldn’t do what we can though. Reaching out, connecting and shining a light can do things, sometimes.

But you know what it can do, what is has done, for me sometimes? It has shown me that thinking on the small and personal level is where it matters, for me. If I think about the massive shifts in policies and resources in the medical system that need to change – it’s overwhelming and literally depressing. The realist in me says to give my head a shake if I think that any significant changes will EVER be gained. What can be gained though is smaller and yet, so much larger in so many ways.

Having someone message me after an entry and tell me that they don’t feel alone; like they are the only one who feels how they feel…. having an acquaintance come to me in person when we run across each other and share how she never knew that we shared this commonality of grief until she saw my blog entry via social media… having a friend reach out when her daughter expressed suicidal thoughts because she knew that I had been there and that I knew what she was going through…hearing the strength in her voice after that conversation and knowing that sharing DID make a difference to her.

These are the ways that differences are made, that some good is found in the bad. We may not be able to do much, but we can make sure that we aren’t silent. We can ensure that no one ever has to feel like they are alone. Sometimes, all we have is the ability to share and come together, and the power of that is immeasurable. So, we talk and we share and we can’t hide; because people who need someone live with enough shadows as it is, we need to be the light for each other.

P.S. I came across this before and it’s worth sharing. Impact, we all have it, and yes, the ripple effect works for hope and hurt.

What’s between your legs? And why does it matter?!

A conversation happened today in which the subject of the events going on in the US was being discussed. I was present but not part of the discussion but when a remark was made that we didn’t need to worry , up here in Canada, and especially here in this city because, after all… there weren’t really that many gays. As a matter of fact, this person said, she didn’t even know anyone who was gay. Well, hold on there…now I was part of the discussion, thank you very much.

After outing myself and being open that I have many friends and chosen family who live in the states and that they have very real and very founded fears for themselves and their lives, not to mention the potential ramifications on their employment and basic human rights, I explained that it wasn’t something that was just an issue in the states. That as a gay woman, in an openly lesbian relationship with another woman, safety IS something that is a consideration, even in Canada.

I was told bluntly that, as a “straight looking feminine woman” I don’t look like a “real gay person” and therefore, I don’t have any reason to be afraid for what is happening in the US since the election. Sadly, this is not the first time – or the last probably – that this sentiment is voiced.

As a Femme dyke, I know that I am very often misread as being straight. I also know that I am always quick to openly correct someone when that assumption is made known. One reason for that is for that exact point – because I don’t look like what some uninformed or unexposed people would expect a gay person to look like. So, in my little way, in my predominantly safe area of the world that we live in, I try to do what I can to expose people.  It’s often frustrating and feels like one step forward two steps back as I see a stranger being dismissive or worse yet, seeing someone who has been working to understand and accept suddenly come out with a remark that is born of long standing beliefs that are, clearly, not as changed as I had hoped.

Later in the day, a small remark from a co-worker about someone who may or may not “be a man” sparked a remark back from me that asked the question “what makes a person a man or a woman. If they say they’re a man, then they’re a man”.

I was frustrated and upset from the earlier conversation and would normally have let this go but not today. So here’s my little roller coaster of “nope, not dropping this one today”, it’s time for a bit of a rant…

*disclaimer, this is in no way comprehensive, it covers just what I ranted about today in person with my co-worker, notably, masculine/feminine and the difference between gender identity and sexual orientation*

What defines a person’s gender? Or their sexual orientation? Or their self identity? Or, or, or….? Spoiler alert, aka the short answer: Not you.

The terms masculine and feminine are not gender specific. They are simply terms that are used to categorize certain traits, mannerisms and characteristics of behaviour and appearance or presentation. Yet they are so often used in such a limited, and limiting way that it’s harmful.

We are taught from as far back as we can recall that a person is labelled as a boy or a girl because of what they are born with between their legs. Along with whatever parts are visible is the expectation of how they will dress, behave and what what roles in society they will fit into. All based on genitals. That’s a lot to live up to based on physical presentation. So what if what a person is, who they are, is not what society says they should be, based on what is between their legs and on their chest?

What do you do with the little girl who wants to ride dirt bikes and play ice hockey instead of ringette? Or the little boy who loves to match his socks to his shirts and draws intricate doodles of flowers. Both of these examples by the way are of children that I knew when my kids were in school, and in both cases, it was the parents who were far more judgemental than the other kids.

Ok you say, some people are gay and that’s ok. Ah, but what if these little kids aren’t gay? What if they are what they are in their expression of themselves and it has nothing to do with who they will be sexually and/or romantically attracted to when they grow up? A person’s gender identity and their sexual orientation are not the same thing.

How do you classify a masculine woman; one who identifies as a woman, has the commonly accepted physical aspects of female (pssst, I mean a vagina) but who is more masculine than feminine in her dress and mannerisms.

How do you classify a feminine man; one that has a penis – so he must be a man (because that is, of course, how you determine these things after all) but his mannerisms and way of dressing or acting would be more commonly called feminine?

Then add in the aspect of sexuality and sexuality orientation.

What if that masculine woman isn’t a lesbian like you thought she would be when you slotted her into that category in your mind? Because all women who dress and act more “like a man” must be lesbians. Just like that woman that you see in feminine dress and make up must be straight. Maybe, maybe not – on both accounts. Oh but what if that pretty, feminine woman has a penis? She might, or she might not. How would you know, and why would it make a difference to what you see her as. What matters is how she sees herself and how she lives her life.

What if that man who is so feminine, and who you assume must be a gay man, isn’t? What if he’s a straight man who is, just simply, more feminine that what you think a straight man should be like? Oh but wait, what if he has a vagina? But then again how would you know, and what would it matter.

So many what if’s! So many varieties and options and possibilities! What if you just accepted a person as just that: a person. My sexual orientation has nothing to do with how I interact with someone in day to day life. Neither does my self identity of gender. Unless we are looking to hookup or date, it just doesn’t matter. It’s really that simple.

You may now unbuckle and get off the roller coaster. The tilt-a-whirl is just around the corner, I’ll meet you there for the next ride 😉

Site sharing

My new little foray into more image and less words for the expression can be found at my new blog site, such stuff as dreams. Still very much keeping up this site, but sometimes a picture can speak louder than words and sometimes words just aren’t needed so this new exploration fills that gap for me :).

For those of you that aren’t on my Facebook feed or haven’t seen it, a little invite to come stop by and see what it’s about.

Also, I know there is a lot of cross over from this blog but just in case you haven’t wandered over to my lolabits blog site, come have a look at the different perspective of life there :). We all have aspects of ourselves, these are a few of mine.

Lola

Do What You Can

It was 5 years ago this week, last Sunday to be exact, that I had a note given to me by my son, Willie. It was in response to an argument we had had that evening and in that argument I had said to him “What is going on with you?!” You see, he hadn’t been himself for months. Many months. He had  been moody and sleeping most of the time when he wasn’t at school (which he had also started to skip – which was unheard of before). He snapped at his brothers more than the usual bickering that was fairly common-place in a house of 4 boys. He had been mostly communicating through grunts or eye rolls or silence and even that was escalating to slammed doors and him storming out of the house. Standard “teenage” behaviour but it just didn’t sit right with me. On this evening in particular, he had responded to a simple question – about something so trivial that I don’t even remember what it is – with a completely out of control reaction. His voice was shaking by the end of his tirade and my son was close to tears and standing in front of me, clenching his fists and fighting to not breakdown. I uttered the phrase that I did because, honestly, I was at a loss as to what he was going through and I knew that it wasn’t something as easy to explain away as him being 15 years old and full of hormones.

His response was quiet. He stood in front of me and said simply “I can’t tell you.” So I said what the first thing that popped into my head. I told him to write me a note; write it down instead of telling me face to face. I told him that it was okay if he couldn’t talk to me but that he had to let me know what was up. He just nodded and walked away to his room. No slammed door, no stomping, he just walked away.

A few minutes later he came out with a piece of paper in his hand and he walked into the kitchen and placed it on the counter. He looked at me as he walked past me again and told me it was there and I could read it – or not – he didn’t care… and back to his room he went. As soon as his door closed I was up and in the kitchen and had the paper in my hand. It was a concise and bluntly worded note to me. You know the phrase about blood running cold? That note did that. As a mother, to read it, scared me. I wasn’t sure what I expected; maybe a nasty rant about how annoying I was to him or how controlling or strict I was or how much he hated the rules of the house… I don’t know what I thought I would see, but it wasn’t what I saw. Instead, it was a clear and simple request for help.

In it, he said, amongst other things,  that he was sure that he had a mental illness but he didn’t know what kind. He said that he was suicidal and had been for a long time – that it wasn’t just a phase. He said more, and he ended with asking for help. He said, literally, “I need help”.

5 years ago, I believed that I could find him the help that he needed. I believed that there were resources that would be easily accessible and that those resources would be able to help my son get better and that it would all be ok. I had, after all, just recently gone through a medical issue with my oldest son. Just the year before, Willie’s oldest brother had developed a large tumour in his neck. We went from the walk in clinic to being fast-tracked in the ER to seeing an oncologist within 24 hours. Biopsies and surgery ensued and all was good. Not great, there were glitches here and there and I had to advocate more than once for him and be a bit pushy but we navigated it and he got the care he needed. The end result was a larger than anticipated scar after surgery and being told that the pathology report was the best kind of “we don’t know for sure but we are certain it’s most likely not malignant” that we could hope for. 6 years down the road now and he’s doing great and there is no cause to think that Christumour (our pet name for his lump) will ever come back. All good.

So, when Willie came to me with what was, essentially, a medical issue that needed to be dealt with, I thought that I would go to the doctor, bringing the note with me like some sort of written version of a snapshot of “what IS this?” ailment and that we would be sent to someone and voila! He would get care and treatment and it may not be easy or quick or without glitches, but that it would happen.

5 years later and I hate to admit it but I don’t believe that anymore. I don’t believe that the “glitches” we ran into were anomalies or that we just had bad luck with finding or accessing resources. It’s a long story and maybe someday I’ll put it all together and try to make sense of it but the short version is that I’ve come, not to bitterness, but to reality about the mental health care system that we have.

I see a lot written and promoted about changing “the system” and about increasing resources or access to resources for people who are dealing with mental health issues. The more I see, the more I am aware that it hasn’t changed and that, in all likelihood, it won;t.

I’ve struggled over the past few months with a sense of despair almost in coming to terms with this. Partly because I did what every person who loses someone does. I thought that living with grief would be easier, better, I don’t know what, if Willie’s death “meant something” or if something came of it that would make it at least not be in vain. The standard reaction that happens that is the attempt to not have a death just be what it is; reality and a part of life.

The fact is that, on a large scale – the scale that we all want to see change -, there won’t ever be the changes that are needed to really make a difference. Part of that is due to the fact that mental illness isn’t treatable like a physical illness. Rarely is there anything like a conclusive test that can ascertain what is “wrong” and even more rare is it that medical professionals have any sort of proven treatment protocol that they can prescribe. Part of it is due though to the sheer size of the system – both the way it is and the way it is needed to be. Frustrating but true. Reality bites. Not liking how badly it sucks doesn’t change it from sucking.

So instead of being dragged down even further than this time of year is already dragging me by this reality, I turn to the idea that was presented to me a couple of years ago. At a mental health resource day that I was invited to attend, one of the youth mental health workers gave me this advice (I’m paraphrasing here…) Honey, all we are doing is rearranging the deck chairs on the Titanic. We may not be able to stop it from going down but we can make it a bit better, however we can, while it happens. While saving the ship that is mental healthcare is beyond what each of us can do, we can each make an impact on someone, sometime, somehow.

Do what you can; be kind, be a shoulder for someone who needs one to lean on, reach out , or reach back to someone grasping for help, be an ear for someone to bend to lighten their load a bit if they need it, be an advocate, be what you can to someone who needs someone. I am trying to focus on making a difference where I can and not thinking about where I can’t.